Dravet

Transition to Adult Care

I will be updating with all the exciting antics Abigaile has been up to, but I wanted to share this. This may be a longer post, but I wanted to share some reflections from Abigaile’s transition into adult neurological care. It’s been a journey filled with lessons, challenges, and growth, and I hope our experienceContinue reading “Transition to Adult Care”

Ultimate Disney World (21st) Birthday Weekend: Magical Moments and Royal Treats

OMG y’all, my 21st (legally drink) weekend was straight fire! 💯🔥 Poppy thought he could sleep in, but I was NOT about that life. I was up at 6:15, ready to kick off the best bday weekend EVER. 🎉 When we finally got up, it was straight to get my princess hair slayed by LadyContinue reading “Ultimate Disney World (21st) Birthday Weekend: Magical Moments and Royal Treats”

June 2024

The first two weeks of June were dog water. On the last day of May we went to have my teeth cleaned by this really cute dentist. The doctor who made me sleep, gave me a new medication and my dystonia did not like it. I have 5 seizures over the first two week andContinue reading “June 2024”