March 2020

Poppy rocked it out this month. First, I thought I would give my cell phone a taste and it was not good for the screen, it went all kinds of crazy. Lucky Poppy got me another one before my mommy called this week. When she calls, I like to put the phone to my ear and just listen as she reads. She worries when I am so quiet but I am listening.

We went to Disney World Animal Kingdom on the safari again. We always have a good time at Disney but is always very tiring.  Poppy is saying we may not be able to go back due to Covid.  Since spring break was longer than expected we went on several walks on the local trails. We also went to a park that has a memorial to 9/11. Pretty cool for a small town.

So we did not want to say anything but I did start a new medication and we will see how it will go. Poppy thinks if I can continue to improve like I am, we can get off some other meds. I am hoping it works. Don’t tell anyone because poppy does not want to jinx it, but I just went two weeks with no seizures for first time in a very long time.

What did suck is my school closed for two whole weeks. We had spring break for one week but they said it was going to be longer. We will see what will happen as they are not saying when we will go back and it is the first week of April and we are still at home. I am not happy as I really miss my teachers and friends. Poppy is ok but he is just the poppy.

February 2020

So I have proof I am the Princes, have you seen my crown. I went to “A Night to Shine” prom. We danced, sang and laughed for hours. And near the end. I was given my crown as proof that I am THE Princess. The rest of the group was given one also, but we know they are fakes and mine is real.

The next day poppy took me to Disney World and we had so much fun. We rode Dumbo, Tea Cups and a few other rides. When all was said and done I was tired. There is a picture of me with two Quacks standing behind me. One is my Poppy. Will someone tell me what Goofy is?

A few weeks later we went as a family to Disney World Animal Kingdom and my sister Natascha joined us (AKA Boppy).It is always nice to spend time with her as a family. I had to much fun on the safari seeing all the animals we went twice.

So one of the medications I was on for two weeks was not very nice and I had a bald spot. So Poppy cut my hair so it would look even. I was not sure about having short hair but I liked it was done. They call it a pixie cut. I say Tinker Bell you have nothing on me and my attitude.

January 2020

We had a busy month and I do not know how to say it all. First poppy got really sick this month and really had a hard time taking care of me. We think he had a new sickness that they are talking about COVID-19 and is still not back to normal. He is doing better so we are going to keep it short. First, Poppy has started taking me on walks down the street and down a paved trail by my home. I really like it as I get to do my second favorite thing, say hi to people. We also got a new set of wheels this month. I wanted the yellow car that I sat in at school, but poppy said we needed the smaller white van. If you look in the background of the picture of my new van you can see my old van. I like it the old one but the really cool thing is I can see out the front window from the backseat in the new van. And I want you to know, I am the princess and don’t you ever forget it.

December 31,2019

Merry Christmas & Happy New Year. Mine was really special we went Disney World this week. Poppy still reminds me Jesus is the reason for the season, but I had lots of fun. I tried some new rides like Buzz Lightyear Space Spin and Toy Story. There are so many people in one place, for the first time in my life I could not tell all of them hi. I still tried.

My mommy sent me this necklace and a music box. It says you are my sunshine.

As the year ends I hope everyone has a blessed New Year.

December 14,2019

I cannot tell you how busy the holiday season is. Today I got to ride in a parade and wave a lot of people. There were running beside our float passing out books for free. Thank you Ms Marge for taking me. It was so cool. I was exhausted and needed a nap because the day was not over.

Just when I thought I could not have anymore fun we went to Cooper State Park. They have all paths lite with Christmas lights. They had free Smores and hot coco. I could not have any as I am still on ketogenic diet, but poppy brought me something special. Santa was there and I had so much fun.

November 29, 2019

Happy Thanksgiving, we had some fun yesterday, everyone seem to not stop eating on Thanksgiving Day. Today Poppy said we had to wake up just like a school day because we had somewhere special to go with Natascha and grandma. It was a real pretty day and I just love wearing shorts in November. Poppy said I had to wear my cooling vest, I went as long as I could without it. Can you guess where we went?????

Magic Kingdom at Disney World and I got to meet TinkerBell. She did not want to believe me that I was her long lost cousin Stinkerbell. I must be her cousin Poppy and Natascha both say I act just like her. If you really want to know the most magical part of my day. IT’S A SMALL WORLD, oh yeah there is nothing cooler. Did you know that is some great dance music. All the cool puppet to dance with you. I had so much fun I could ride that all day long. Poppy said it was late and we had to go, but we would come back soon.

November 8,2019

Today was curriculum day at my school and parents came and visited with us. Poppy surprised me by showing up. It was a lot of fun, first we did a science project which showed us how soap repeals oil. Next we ate lunch with Poppy. Then we went into the gymnasium with the entire school. Wow can we be loud , we all had fun screaming until the scientist came in. She showed us how when gases expand they can move objects. They even showed how to create a vacuum to suck a hard boiled egg in a jar. We were told never to try this at home as we should not play with fire. I even got a chance to touch bubbles made by dry ice. They were funny. As soon as you touched them you seen a big puff of smoke. Wow did we have fun.

November 5, 2019

Wow there was so much fun last week I am still tired. On Sunday we rolled back our clock one hour. I hate it as I keeping waking up at 0500 think it is time to get up and go to therapy and school. I know I will get adjusted soon, but in the meantime I will keep making sure daddy does not get that extra hour of sleep :). I wanted to share some of my school work from the last week.

November 2, 2019

Wow did we have fun today. Poppy took me to Homosassa Springs State Park. To be honest it is fun watching all the animals. We saw Manatees, Eagles, Deer, Flamingos and plenty more. If you really want to know what my favorite part was watching all the crazy people walking around and playing the hi game. I love watching people jump when I yell at them “HI”. They don’t know if they should respond or run. It is about to get very busy with the holidays. So it may not be able to post as much until the New Year.

November 2,2019

it was a nice cool day in the 70’s today so poppy and I went to Homosassa Springs Wildlife State Park . We seen a lot of animals, like deer, manatees, eagles, and flamingos. It was a fun time. We had so much fun just walking in playing the hi game. The “HI game” is were as we walk I tell people “HI” until they respond. If they don’t respond I just keep getting louder and louder. Once they respond, I just laugh and giggle.