Happy Birthday to me, Happy Birthday to me, Happy Birthday dear Abigiale. Happy Birthday to me. Did I mention it was my birthday. In my family we do not celebrate just one day but a whole week. Why would you not celebrate a princes birthday for a whole week. We end the celebration on September 14th, which happens to be my sister Natascha’s Birthday.

When I got home from school there was a box at the front door. When I seen the box at the front door, I knew it was from my momma and was not setting it down until I opened it. Thank you momma for the tea set, I love you.

If you did not know my sister is a cast member at a Disney World which is real cool. Over the last few weekends we went to Disney World Magic Kingdom and they are celebrating their 50th Birthday. Poppy said the first time he went to Magic Kingdom he had the same amount of hair as he does now. He went the first year it open, he is old. Enough about him. The next weekend we went to Disney Springs and did some power shopping. If you did not know it, I love mouse ears. I have 14 pairs and my collection is growing. Poppy said I have to slow down after adding 3 pairs this weekend. After shopping we went to dinner at the resort Natascha works at . It was cool eating on 13th floor.

Since this blog is about my day, lets get down to some of the normal part of my day. I included a picture of me doing pull ups at occupational therapy. I go the occupational therapy two hours a week. One hour I work with a therapist who works on rehabilitation. The second hour I go, we work on sensory items. Sometimes my body just wants to go in multiply directions a one time and I do not know how to control it. Sensory therapy help me work through the constant motion of dystonia. I have so much fun with MS Jolee and MS Kovee and very thankful for all the time we get to play. Every once in a while I get to see a cute boy and I work a little harder. But that is another story.

I want to leave on a positive note. I have gone 43 days without a seizure and never this is a new record for me for the past 15 years.

So here is the good news, Poppy started running to lose weight and and has lost over 65 lbs. He says “he isn’t going nowhere soon”. Well he is going to run 3 races to raise funds for the Dravet Syndrome Foundation. He will run a 5k OCR, 10k and half Marathon in three weekends in a row in September and I get to ride in the 10K. Even though the 10k is virtual, I don’t care it just fun going that fast (get the need for speed from my momma). We are asking everyone to please give as we are trying beat our record for last year of $200.00.

I graduated from high school this past May and it was awesome walking for my diploma. So what do I do now with my days? I go to special class (transition) to develop life / work skills since I will not be going to college. Lucky for me this is at the same building I went to school so I get to see al my friends from the past 5 years. On Wednesday August 13 was my first official day in Transition. Ip got to meet a whole new group of young adults like me. I can go here until the day I turn 22, but poppy is not sure if we will stay here that long. I was so excited when the bus pulled up, I could not get the smile off my face. Poppy brough all kinds of therapy equipment to my classroom. Get this he has me doing therapy for a least one hour per day in school then he picks me up 4 days a week for therapy after school. Seriously he is working my booty off. On the first day of school. I felt bad for mommy during our call. I was tired from all the excitement that I fell asleep while talking. ” I am sorry momma I was really trying to stay awake”.

My big sister AKA the boppy works for Disney as a server. Guess what Natascha gets free Disney World ticket and took poppy and me to Animal & Magic Kingdom. It was so cool. We rode It’s a small world, People Mover, Peter Pan, Buzz Lightyear’s Space Ranger Spin, Kilimanjaro Safaris, and my new favorite Na’vi River Journey. We rode Na’vi River Journey twice and I just fell in love with all the colors and lights.

So if you read this far, I will ask once more please give. And if you really want to do something cool. Join Team Abigaile. It is because of the research provided by the Dravet Foundation I just went 4 weeks without a seizure. This is really a big deal for family like mine.

I am exhausted from all the work I did in July. First I went to transition classes during summer school this year and had so much fun meeting new people. We are learning life and working skill. They wanted me to open garbage bags up but I wanted just throw them on the floor. It was a fun watching MS Marge (my aid) get so mad at me.

Poppy would come and pick me up after a few hours and I would go to therapy in Kissimmee FL. Not just any therapy but suit therapy. I did this therapy from 2011-2015 and it is very hard. It was because of this therapy I could walk for a short time with canes. I had some medical issues happen from 2014-2017 and I really lost most of my strength & skills. Poppy is happy about the progress but 3 hours of therapy per day for 3 weeks daily is a lot of work and I am not happy with him.

Let me tell you about the coolest thing happen at therapy. I met this guy named Thomas. We were both doing therapy and we both tried to show off for each other. We even got to sit next to each other once. OH don’t tell Poppy, but I think he is handsomer. He even said I was pretty, but we all knew that.

Medically I had a really good month with lots of routine doctors appointments in between therapy. I am a whopping 92 lbs and was really glad for the last week of July and therapy was over and I got to rest. My nurologist was not happy with the increase in seizures and said I had to go back on one of my meds. So I am on two meds right now. Hopefully it will get better.

We have some exciting news to share on the blog. Poppy started running this last year to get back in shape and he purchased a new running stroller in June for me to ride in when he walks and runs. Starting in August he is going to start pushing me during his weekend runs and we are going to start racing together. My first run will be a 10K virtual run for Dravet Syndrome Foundation, its the “2022 Steps for a Cure” , Poppy will be running and pushing me for 10K (6.2 miles) while I enjoy the breeze. If you would like to donate to the Dravet Foundation, please Click on a link here. If you want to join TEAM ABIGALE THE WARRIOR PRINCESS, please click here as we will be running the Withlacoochee Trail starting at the Floral City Trail head on September 17,2022 at 8AM. You are welcome to join us.

I have some really exciting news to post but I am going to wait until September to share. As a hint, thank you “Team Hoyt” for your inspiration.

Since I graduated in May and I had a few weeks off from school but I was excited to start in a new classroom and it is called transition. I will be learning job skills.  It is very hard work being a princess but apparently being a princess is not enough for an adult. My new teacher is MS Kim and I really like her. You have to keep it a secret but I liked her husband more (my old PE teacher). Will see how it goes.  Since I did graduate from High School, I thought I could just crawl on out when I wanted to. Did not happen. MS Marge made me walk back in to the classroom.  That’s just not right if you ask me.

I really like to swing and cuddle with big hugs, so poppy bought me a giant pillow case the squeezes me. I think it is pretty cool and it is just nice to sit with it on. He says it great therapy, I just don’t know if it is for me or him? 

Near the end of the month Poppy got me a new ride for our weekend walks. We use to have a jogging stroller just like it and sold it when we left Arizona. I really like it and know this is going to be very cool, but we have to get through July first.

I had one of the worst months with seizures than I had in a long time and it was not fun. Since we had a big May and July will be really busy, we just chilled at home most of the month.  That’s oK too.

I started the beginning of the month with one of my favorite people Boppy. She is living near her school now in Orlando and we don’t get to see each other as much. She spent a night with us and we got to watch a movie and snuggle.  I really do miss her.

 I go to a special school and guess what? I DID IT. I am officially graduated from High School (modified diploma). It was so cool. We had 5 people graduate and guess who was on the front page of the local newspaper. Yep me, check it out here.  I though I was done and could just enjoy my life as the Princess, but guess what? Poppy woke me up the next morning and sent me to school. What gives I graduated?

At the end of the month, we went to Family Café Conference. It has some really cool gadgets for disabled persons and LOTs of people to say hi to. I even seen a few cute guys but don’t tell poppy.  At the end of the day, we drove back home and watched the sunset over the gulf. Due to my heat sensitivities resulting in seizures, I cannot be outside much during the summer. It will be a while before I get to see one again. Florida is great in the winter but the summer no so much.

Well spring break is over but I love spring and all the beautiful flowers. We live in a rural area going from my home to Brooksville is lined with purple flowers. If you did not know purple is my favorite color. We went to The Villages the other day and also seen a rainbow. Poppy took some pictures to share.

Happy Easter everyone, Jesus is the reason for the season. Poppy and I enjoyed a Passover meal and read the story about Moses and the how God delivered Jewish people left a terrible place called Egypt. Then he told me another story how Jesus was a deliverer just like Moses but even better. I hope you know the story, if not you should read it.

Happy Birthday Poppy. So just to let you know every once and a while poppy and I need a day off from each other. He can really get on my nerves, but that another story. So he went to my Aunt Sherris house and spent the weekend by the pool. That is ok with me MS Marge came over and we chilled. I eat special diet so Poppy has to pre-cook everything and sets it up so there is no issues. MS Marge and Grandma both know how to cook it but he always tries to have everything ready.

In January my doctor asked poppy to start tapering me off one of my medications. We are on our 3rd step down and I am not sure how it is going. We will see.

Poppy and I got to see Boppy (Natascha) at Disney Springs. She is so excited she is getting ready to start working for Disney. It was all she wanted to talk about it. I wish she would talk about something exciting like boys. We got to reenact one of our favorite pictures from 5 years ago. I was praying the whole time “Boppy please do not drop me.”.

We went to NASA again this month and spent two days there. It is always fun going to see people. Poppy gets really weird; he is such a geek at these places. I try and act like I do not know him, but he is pushing my chair so I am stuck with the geek. If you look behind me you can see Artimis, the new rocket to go to the moon.

Mommy sent me a I love you gift. It was a pretty inspirational sign and thermal mug. I am very thankful.  

We are trying to take me off one more medication, but my seizures and dystonia are starting to pick up. Poppy is afraid I will have to go back on the medication so the seizures can get further apart. After going up to 29 days seizure free in the last year it really sucks.

I know this should have been first but Happy Easter everyone. Please remember he has risen.

OMG there were some many highs and lows I do not have enough time to tell you all that is going on. First, I was scheduled for some dental work so I had a get a covid test. (Don’t tell poppy but I was checking out some really cute guys. After the test Poppy took me to IKEA. That place is the coolest place in the world and I could live there with all the people and things to look at.

 Dr Jerry who has been treating me since 2006 is moving to Tennessee. I am going to miss him so much. Poppy said we are going to keep seeing him and will go to see him once a year. Dr Jerry could not believe how good I was looking. He said it was the best he has ever seen me. This was really made me happy but still very sad I will only see him once a year. At least I got to see Dr Jerry once more. Then after all of the appointments and testing to have dental work, they cancelled my appointment two days before.

My school had our spring dance/prom early this year. I love dressing up like the princess I am but here is the really exciting part. My Aunt Sherri gave us a room to stay at Disney Animal Kingdom Resort. I did not want to leave the patio just watching all the animals out our back window. I even seen Pumba and kept waiting for him to sing “Hakuna matata”. He did not but o well. There are even 6 mini zoos around the resort that you can watch the animals. It was a little cool and rainy at points but who cares we had lots of fun. I really hope I can go back some day. Thank you very much Aunt Sherri.

By the way I do not understand why these two quacks keep photo bombing my blog.

Happy New Year Everyone. Well this blog is titled “A Day in the Life of a Princess Warrior” AKA ME. Here are a few pictures of my day. First who likes cold weather. NOT ME. Do you see how much cloths I have to wear just to get on a bus. That is why we living in Florida to avoid the cold. Well enough of my rant.

As a Princes I would prefer to be hand feed but poppy is not having it so I eat with a special spoon because of my dystonia. Dystonia cause my body to shake like Parkinsons disease in older people. This spoon helps stabilize my food so it is easier to get in my mouth.

I can speak words but I also speak a special language called Abigaileses. My family understands me but others have a hard time. So we are trying out this new computer. The computer speaks my words when I just look at the picture. It is so cool. I really had fun with the game were I put pies in peoples faces. Truth be told, I only did it to the girls pictures. I would would not want to put a pe in a cute guys face even on a computer.

I usually go to therapy 4 days a week. Here are a few pictures from my OT work. I love being on a swing and it does not matter what kinds. Poppy always makes comments how I use to hate it. I just think he is crazy, why would I hate being on a swing.

Please excuse the blank spot but Covid haze happen.