OMG y’all, my 21st (legally drink) weekend was straight fire! 💯🔥 Poppy thought he could sleep in, but I was NOT about that life. I was up at 6:15, ready to kick off the best bday weekend EVER. 🎉 When we finally got up, it was straight to get my princess hair slayed by LadyContinue reading “Ultimate Disney World (21st) Birthday Weekend: Magical Moments and Royal Treats”
Author Archives: Princess Abigaile, Dravet Warrior
August 2024
Yo, what’s up, y’all! August was a whole vibe. So, Hurricane Debby decided to swing by at the start of the month, and my poppy said we had to prep… by going for a run. Like, seriously? 😂 But hey, I’m glad his leg is better now, and we’ve been running every weekend. It’s actuallyContinue reading “August 2024”
July 2024
Big Yikes for Summer: The Struggle is Real! Hey fam! 🌞🔥 Can we just talk about how HOT this summer has been? Like, seriously, it’s been big yikes. Poppy has totally banned me from going outside during the day because of the heat. So, no Disney or State Parks for me. 🙄 You might beContinue reading “July 2024”
May 2024
This month started off really rough. My regular wheelchair was not at home and poppy was using the transfer chair to bring me in the house. When it started pouring I went into a seizure and fell out of the chair. I put a big bump on my head. We went to the hospital toContinue reading “May 2024”
Reality VS Social Media
I will be posting Mays update in a next few days but I wanted to add this. Reality is just not social media; We all know social media is filled with lots of pretty moments, however we also know real life happen in the background. Yesterday was #dravetawarnessday my post was of the awesome timeContinue reading “Reality VS Social Media”
Love Always Wins
Fly high Michael Dean H 06/22/2003 – 5/18/2024 You earned your wings. Abigaile is on the more severe end of the spectrum with Dravet Syndrome. One the hardest parts of dealing with Dravet is the lost dreams that our warriors will never know what love is outside of family and friends? Abigaile had the “hots”Continue reading “Love Always Wins”
2024 March & April
What have I been up to???? Disney and lots of it. I have gone at least once every week for the month of March & April. Guess what I am NOT even tired from it. If I had my way, I would live there. Here are a few cool things that happened and a fewContinue reading “2024 March & April”
I am Groot
Abigaile uses a communication device; that when activated with her hands or eyes it speaks for her. Yet she still loves meeting people in person and trying to communicate verbally. With Dravet Syndrome someone is always required to be around her; who knows her and is medically trained. Her aids and I know her andContinue reading “I am Groot”
February 2024
I want to start my post off by saying Happy Birthday Momma. I love you. I know all our parents teach all to share, but somethings are not meant to be share. Who likes the flu, you must be delulu. It started with a couple of my friends at school. Then I brought it homeContinue reading “February 2024”
January 2024
Happy New Year !!! I know I complain about doing physical therapy intensive and that is not the only therapy I do. Poppy takes me to Speech, Occupational and Physical Therapy every week. He comes and gets me from school which means I have to leave Mikey and all my friends. Get this once weContinue reading “January 2024”
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