Big Yikes for Summer: The Struggle is Real!
Hey fam! 🌞🔥
Can we just talk about how HOT this summer has been? Like, seriously, it’s been big yikes. Poppy has totally banned me from going outside during the day because of the heat. So, no Disney or State Parks for me. 🙄
You might be wondering why that’s such a big deal. Well, the heat can actually trigger my seizures, and that’s not fun at all. I have this thing called a partial complex seizure where I end up repeating “Hi” over and over and don’t even realize I’m having a seizure. 😵💫 For some reason, I find it super hard to snap out of these seizures, and they sometimes turn into a tonic-clonic (grand-mal) seizure. These are the worst because they can last over five minutes. If it gets really bad, Poppy has to give me a special med called Diastat. Let’s just say, it’s not the most glamorous way to get medicine (if you catch my drift). 😅
Poppy also played musical chairs with my toy shelf. First, it moved from my bedroom to my play corner, and then, bam!—the next day it was in a totally different corner. I guess he did not like how I emptied it, Classic Poppy, right? 😆
But, it’s not all bad news! We did manage to sneak in some indoor Disney adventures—yeah, we went to IKEA twice! It’s basically my second favorite place, right after the actual Disney.
Oh, and guess what? I’m starting to transition to adult care now. I met my new neurologist, but Poppy’s not totally sold on him yet, so we might be switching things up. Also, there’s a chance we could be heading back to St. Louis soon. Haven’t been there in forever, so fingers crossed it’s not in the middle of winter! ❄️
The good news is that I had fewer seizures this month, so that’s a win! 🎉 We’re gearing up for the new school year, which kicks off in August. I’m super excited to catch up with you all then. Stay cool, stay safe, and catch you on the flip side!
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