February 2024

I want to start my post off by saying Happy Birthday Momma. I love you.

I know all our parents teach all to share, but somethings are not meant to be share. Who likes the flu, you must be delulu. It started with a couple of my friends at school. Then I brought it home to Poppy. We really did not do much the first week or so of the month besides try and get better.

It fnallly started to change on Friday February 9^th to Tim Tebow Night to Shine Prom. It was awesome. I was with the cutest guy. We so much fun. We went for a limo ride, danced and finished with…. Micky and I being crowned King & Queen of the night. It was special.

This month Poppy ordered annual passes for Disney; he is doing his big one. He wasted no time and we went to Magic Kingdom twice. The second time Boppy met up with us. Now if you did not know, Boppy is a cast member at Hollywood Studios. During our ride on “It’s a Small World” she fell asleep. How could you fall asleep to such a cool song. She said it a lullaby to cast member.  Later that night we rode this new ride called “Tron” it was my favorite and I cannot wait to ride it again.

Every once in a while, a Princess has to spend time with her peers. We ate lunch Akershus Royal Banquet Hall in Norway in Epcot. Poppy said it was like eating at IKEA. That’s fly to me as Ikea is my favorite store.

Sleeping Beauty needs to go back to bed. I have seen Mermaids swiming (see January 2024) and Ariel is not that special. Now if you are talking Bell, she was dressed just like us southern bells like to dress and be ready for the ball. Cinderella let me tough her beautiful gloves and we very polite. If you ask me Snow White was absolutely beautiful, (she reminds me of Boppy). I just wanted to hug her. Poppy pulled my are back when I tried. I would like to meet her again. Hey poppy, I turn 21 on September 7^th. Hint Hint

If you did not know, Dravet Warrior have issues with walking because of our gait is altered by this disease. While I use to walk all the time from 2012-2014 and still Poppy makes me go to therapy. I cannot do it all the time for two reasons. I have dystonia in my legs. Some people say it is like Parkinsons Disease. My feet will turn inward and shake sometimes so hard they bounce my whole body. So I spend a lot of time in my wheelchair. Its ok with me because you should see Poppy chase me when I go after the boys. Another issue I have is Scoliosis. I had this for years but we did not start to watch it until 2017. One doctor has suggested I get an elective surgery, but the rest of my medical team is against it at this point. Poppy is ordering me a special seat that will be molded just for me. It will help me sit up very straight, but it will not cure me. We will see how it goes.

March is spring break so let’s see what poppy has planned then. Till then I have some boys to catch & kiss.