January 2024

Happy New Year !!!

I know I complain about doing physical therapy intensive and that is not the only therapy I do. Poppy takes me to Speech, Occupational and Physical Therapy every week. He comes and gets me from school which means I have to leave Mikey and all my friends.  Get this once we get to therapy, he sits down while I do all the work. What gives, I am THE Princess and should not have to work. That what you other people are for. Anyways, I like MS Carli at PT, she is usually nice to me until I don’t want to work she can be mean and make me stand in a corner. Poppy is changed my therapy so I only work with her because I do like working for MS Carli but he said I still have to go to intensives every other month.

Natascha took us to Animal Kingdom this month. It was kind of cool at first and I just did not understand why we went on the safari ride with no window in the cool morning. This is Florida, we should not be cold.

Poppy also took me to see the Mantee’s in Homosassa State Park. It was cold that day I tried wrapping up. It was cool to see all the people standing in the cold watching animals just lay in the water. Later that week we went to Weeki Wachee Springs State Park and watched the Mermaids. They are so funning. People with no legs swimming.  The boats were down so we did not get to go for a boat ride. I hope the are fixed soon, because I really liked them.

Lucky by the end of the month winter was over and we went to the beach. I really like my beach chair; we also use it as my running chair. Since Poppy hurt his knee, we have not gone running so it was nice to shake off the dust.

I am a Dravet Warrior and I know I am going to have seizures, but last year I only had 24 and It was almost weird going with so little. In 2017 I had over 200 seizure so Poppy is really happy.