August & September 2023

August means back to school. I know my kids don’t like it, but I love it. Poppy always sends me of the first day with a new sign. He gets a laugh, I think he is a dork, but that is another story.  I am in the same classroom as last year and when it gets too loud, I like to go outside and enjoy some sun. Oh, and look at the boys.

One thing about living in Florida, is we have beaches but sometimes it is not easy to get around. Poppy found this cool place who gave me a set of wheels that fit my running wheelchair. It is so cool going on the same. We even can get right up to the water and watch the sun set.

Now September is the time for the greatest celebration of the year….my birthday. This year is no different, my big sister boppy is a cast member (works at) Disney World. We went to Epcot Center and I met my favorite movie star in the whole world Mary Poppy. That lady knows how to have fun. I was actually speechless and did not know what to say next. Now we also met Cinderella these two very cool sister Anastasia and Drusilla. They were so much fun. I don’t know why people call them evil.

Now in my house we have a birthday week and it ends 7 days later on Boppy (Natascha) birthday.  She also took me on her birthday to Magic Kingdom. While we met a few other cool people like Capt Jack Sparrow, Peter Pan and Airele. There is no one as cool as Natascha for taking me with. And guess what poppy made a sign for her to about how she only thinks she an adult at 25. Magic Kingdom is my favorite because we get to ride cool rides like “It’s a Small World”. 

Every few years I have to do a special test called EEG. The put these fancy looking wires on my head and see how much seizure activity I am having. Since I have Dravet Syndrome, I always have something going on in the background of my brain. We also did a week of intensive in Celebration Therapy. While I know it does me well, who said I had to like it.