APRIL 2023

I do not know if I know how to handle not going to one amusement part for a whole month. We life in Central Florida. Really poppy better make up for it next month. So here is the round up from what was interesting for April.

Poppy did make up for not going to the amusement parks by taking me on 3 long runs, including a race.at my school. See April 15,2023 post about “Doing the Hustle”. It was a lot of fun yelling at poppy to run faster up the hills during our 10K. The hills were not that big to me, but he kept slowing down and walking. We did our fastest race at 1:06:20. Now here is the cool part about the race. This guy Matthew Beck works at our local paper the Citrus County Chronicle took my picture at high school graduation ,was at the race Well Matthew Beck remembered me and he took our picture again for the news paper. It must be because I am so pretty or he just has never met a real princess. We poppy asked for a copy of the picture and gave him our card for Abigaile.org. Well we met with him again and he took my pictures a third time. This time he did it when Poppy and I went for a walk. Let see what happens.

So Poppy is running thing called a marathon this fall. I do not get what the big deal is, he runs all the time. Anyways, in my transition class MS Kim and I made some cool looking shirts for Poppy and I to wear when we run on the weekends. Get this they say Abigaile.org on them.(You can see them in the pictures below). It was a lot of fun. MS Kim and Moppy (MS Marge) let me do special projects with them. I get bored sometimes, so I go flirt with Mikey this cute guy in my class. Ops I need to watch what I am saying. Poppy thinks I am learning life skills.

Poppy picks me a couple times a week and takes me to therapy. One Monday, Poppy seen this little kitten walking by some weeds. Poppy yelled at MS Marge because she is a cat lady.(Haha got a good one in there). MS Marge took him to a vet and he was only 3 weeks old and had an eye infection. Ms Marge named the kitten Jack. He was not old enough to be on his own and needs some medical care. If Jack gets better I know someone looking for a kitten. Boppy (Natascha) is looking for a second kitten to keep her cat Captain company. If Boppy can adopt Jack she will have two kittens, Captian & Jack. I wonder if she will get a third cat and name her Sparrow?

This month my 35 days without a seizure ended. It is so nice going so long without my body going crazy. I know I have small seizures all the time, but the big ones really take it out of me and all I want to do is sleep at first. Well actually I get mad when I come out of them and scream then I take a nap. We also had two doctor appointments. The first one we took pictures of my heart to make sure I am healthy. Yep, I am good to go for another 6 months. That afternoon Poppy took me to my neurologist. She kept my medication the same but we are going to change my diet again. I am on the Keto-genic diet, a lot of people have tried the non-medical version but it is not really close to what I am on.

Seizure Awareness

The Ketogenic diet I am on has helped with my drop (myoclonic) seizures. These are small seizures that do not really hurt, but I just fall over without notice. I use to wear a helmet when I was little so I did not hurt my head. The drop seizures were a lot worse, but once I started the keto diet they pretty much stopped unless something else is wrong. I started the classis keto-genic diet to control some of my seizures. On classis diet, it is monitored by a dietician and Poppy has to weigh every food I eat on a scale to 0.01 a gram. When I started I was on the classic diet for 4:1 ratio. What does this mean? For every 4 grams of fat, I was allowed (.7) grams protein and (.3) grams of carbs. So essentially carbs were out of my diet for 4 years. When I started this diet, Poppy and I stayed at the hospital for a week to make sure nothing serious happen. I was cool with it, new people to see and say hi to. My doctor appointment this month we decided I could go to 2:1 ratio. Which means more food less oil. To give you a comparison, most people doing keto diet for weight loss are 1.2:1 ratio. They seriously get to eat solid food. When I first started the keto diet I will never forget when MS Kay took a bit of my (4:1)food in High school by accident. She made the funniest face. Poppy learned a lot about keto-diet for seizure control at Charlie Foundation. He also learned how to make a lot better tasting food. Don’t get me wrong Poppy can cook, but it was rough when I first started Keto. If you want to see how not all cheese omelets are not the same. See the picture below, Can you guess which one is a 4:1 VS 2:1 ratio? Yes, that is straight olive oil. Ready to do shots with me?( Olive oil not alcohol, I am only 19 you know.)

Keep an eye out for special post this next week. A lot is happening at Abigaile.org. Also leave a comment and let me know what you think of the new web page. I made Poppy change it to purple my favorite color. Which also is the color of epilepsy awareness.