November 2022

In case you did not know I cannot speak a lot of words in English as you know it. If fact I speak Abigailise, A few people know how to listen but not enough. My poppy interprets what I am say and let you know. He also censors when I get mad. He says some four-letter words that he will not let me say. While I would like to speak or write my body does not always co-operate. I have tried using an iPad but when my hands do not work because of my dystonia I am left speechless. That is coming to an end. This month I got my Tobi-Dyno Vox sight communication. I can look at the screen and move the cursor to a picture or word. The screen then speaks what I type. This is very tiring, so right now I am only using it a few minutes at a time. I hope to build up my eye strength over time and use it all the time.

For some reason Poppy keeps taking me to this really hard therapy in Orlando. I like the therapy were the therapist listen to me and play only games I like. Every time I get a therapist trained right; he changes them. He keeps telling me he will not change therapy in Orlando. Ugh will someone tell Poppy I hate hard work.

Poppy and I set up our Christmas tree the weekend before Thanksgiving. Well Poppy set it up and I move my chair around and ran over his toes. He kept saying that hurt. I never know setting up a Christmas tree hurt so much.

The last day of November Poppy said I did not have to go to school and therapy. I was like so what are we going to do. Well, I got to spend a who day with my favorite (and only sister) Natascha. She took us to Disney World Epcot Park. When we arrived, I said “HI Disney” and poppy /Natascha were so excited, they acted like I never speak words.  It was so much fun. I rode Chevy Slot cars twice, Ratatouille twice, Planet Earth Twice, and walked through all kinds of stores. I wanted to go on Guardians of the Galaxy, but Poppy said NO. That was no fun. It was my day.

My doctors did not like how some blood work looked, so we are changing some things on my diet. I don’t mind eating less oil. I just hope my head does not go screwy and have seizures. My dystonia was horrible this month and I would like a break.

Ps Would you all tell Poppy know, when I pull the covers over my head it means I want to go back to sleep and not go to school.