September 18, 2022

Let the running begin. We did our first virtual race today. It was lots of fun telling everyone “HI”on the Withlachoochi Trail. We ran 10K (6.2 miles) in 1 hour 22 min pushing me (about 120 lbs with stroller). This was the longest poppy ever ran with me and it was a lot of fun. I cannot wait until the next time. Poppy is looking for a run were we can actually race with lots of people.

We are also celibrating me going 54 days seizure free. For people who do not already know. This is the longest I have actually gone without a seizure for over 15 years. It is really cool and Poppy said now that we have gone 30 days he is looking forward to 6 months seizure free. I started a new medication last year and groups like the Dravet Syndrome Foundation help with funding research for new medications. Please give if you can. Here is a link. I do not receive any funds, but I do go seizure free because of research in new medications. So please give.

Also Thank you MS Marge for making the shirts for running. Poppy let me wear one of them. Poppy is going to race two more races over the next two weekends. I wish I could go but the first one is a muddy obstacle course and he cannot carry me. The second one is a half marathon and he said he is not ready to run pushing me 13.1 miles yet. He did promise he will one day.